Ocrevus Infusion Day

Today marks my second full dose of Ocrevus, and given all that it has done for me already, I look forward to it continuing to keep my multiple sclerosis stable and (maybe?) provide me with even more benefits!

The week before beginning my first dose of Ocrevus one year ago, I was unsteady with my walking, my brain was foggy, and I had optic neuritis. Within one month, all three symptoms began showing improvement!

So, as I’m sure you can deduct from my quick recap, I am very thankful for Ocrevus!

An Infusion Day Schedule

I’m still within the observation hour, but my Ocrevus is officially finished pumping. As I sit on the couch, waiting to be cleared, the at-home nurses are sitting in the other room completing paperwork.

Enjoying my infusion at home

Some people ask me what the day looks like for an infusion. Well here you go:

Last night, I was called around 5:30 to confirm the time they would be arriving this morning to start the process. I always like doing mornings so I can have the rest of the day free.

8:00AM – The medications need to be refrigerated, so at this hour, I remove them from the fridge to warm up

I also need to take Tylenol and Bendryl before beginning.

8:30AM – The nurses arrive, and we chat a bit about how I’ve been feeling.

9:00AM – I’m given a dose of steroids.

9:30AM – The Ocrevus begins! I love being provided with the little carry case rather than being attached to a pole.

My blood pressure, heart rate and temperature are monitored every half hour and remain stable.

12:00PM – The Ocrevus has finished pumping!

The One

The nurses need to stay for a one hour observation, but I just finish binge watching my show on Netflix while relaxing on the couch.

Since I started the show The One back at 9:00, I managed to power through three full episodes. Ocrevus is a great excuse for some major TV binge watching.

And that’s really it?

That’s really it.

So in about fifteen minutes, the whole process is over, and I won’t have to worry about it for another six months! Take that, MS!

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Search around my site to learn more about Ocrevus, or check out my short-read memoir, You Don’t Look Sick for my full story!

Published by Kristen Dutkiewicz

I am a an author, recently releasing six short-reads/novellas on Amazon, including my short read memoir about my journey with multiple sclerosis. I live in a suburb of Philadelphia with my fiance and two cats. When I am not writing, you can find me either exercising or reading!

5 thoughts on “Ocrevus Infusion Day

  1. Hubby’s infusions are different. We drive one hour to the neurologist’s infusion and research center. He’s had the doses which are 2 weeks apart so far. The infusion takes about 3 hours and then he has the observation hour. We then load back up in the car and drive home where he naps. Fortunately for us, the six month intervals will keep us out of snowy weather for the most part.

    He’s noticed subtle changes in his hands but not able to stand and walk. He feels better overall. The heat and humidity really give him fits and he received a cooling vest from MSAA (Polar Products). He has two goals: get his hands back so he can play guitar again and get out of the wheelchair and on his feet so he’s more mobile…even if it’s with the rollator. We don’t know if O will reverse that symptom. I believe most people notice changes after 3-6 months and up to a year after the first infusion. He goes back in November for the next infusion.

    Liked by 1 person

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